Our neurosurgeon here says demyelinating lesion (MS). Our neuro-oncologist says tumor. Philadelphia Children's Hospital is coming in with the same inconclusive conclusion in its second opinion. So now we wait for one final MS marker test (NMO) to come in early this week. We also await the second opinion from Boston Children's. If the NMO is positive, there is a strong case for MS. However, if the NMO is negative, it does not rule out MS completely. The docs at Denver all agree that if the results are negative, we adopt a 'wait and see' approach and re-scan in 4 weeks. "Can you guarantee that if this turns out to be a tumor, it won't grow a lot in 4 weeks?" I asked our neuro-oncologist. "We are pretty sure that this is low-grade if it is a tumor, but no, we can't guarantee that without knowing exactly what it is," she answered.
I wonder sometimes why every health issue my children have has to be 'atypical' and complicated?
Time for more prayers!!
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