All the second opinions are in, plus two more from the team at Johns Hopkins and Dr. Norbert Liebsch, a world-reknown radiologist at Mass General. All of them say the same thing: Wait and see. After talking to Dr. Liebsch today, I continue to feel a lot more comfortable with the idea of waiting. He has been beyond nice and super helpful, despite the fact that K has something that doesn't fall into his area of interest (Chordomas) and that he's an extremely busy man. This says a lot about how much he cares about curing kids ... from whatever it turns out to be that ails them. We feel blessed to have a great team here at Denver Children's, but it's also nice to have other eyes focused on K's case, as well.
The next MRI scan is scheduled for mid-August, so unless K's symptoms worsen and we have to scan earlier, we won't know anything until then. It's nice to see her playing and being a normal kid, but it's hard to hear her complaining that her head hurts a lot. Her bouts with headache and sometimes dizziness mostly occur in the middle of the night, first thing in the morning or in the afternoon-evening. At least during the bulk of day, she can have a lot of fun without being in pain.
Daily miracles and blessings ... we thank Heavenly Father for them every day!
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